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American Childhood Cancer Organization Applauds World Health Organization’s New Global Childhood Cancer Initiative

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FOR IMMEDIATE RELEASE – September 28, 2018 – Washington, D.C. – The American Childhood Cancer Organization (ACCO), the soleU.S. member of Childhood Cancer International (CCI) provided its overwhelming support today for the World Health Organization’s (WHO) 0announcement of its new global initiative to address the disparity between childhood cancer survival in low-middle versus high-income countries. The announcement came at the United Nations (UN) General Assembly’s side-meeting on childhood cancer which was organized by the Missions of the Republic of Uzbekistan, the Hashemite Kingdom of Jordan, El Salvador, the Republic of Moldova, the Kingdom of Morocco, the Republic of Philippines and the Russian Federation.

Funded through a generous donation from St. Jude Children’s Research Hospital, the WHO Global Initiative for Childhood Cancer partners with national and international *stakeholders including CCI to provide leadership and technical assistance to support governments in building and sustaining high-quality childhood cancer programs.

Each year, more than 300,000 children ages birth to 19 years are diagnosed with cancer around the world. Approximately 8 in 10 of these children live in low and middle-income countries where their survival rate is often near 20%. This is in stark contrast to high-income countries, where cure rates exceed 80% for many common childhood cancers.Screen Shot 2018-09-26 at 3.15.41 PM

How urgent is this global initiative? “Childhood cancer is the number one non-communicable disease (NCD) cause of death in children globally,” said Ruth Hoffman, ACCO’s Chief Executive Officer, and President of Childhood Cancer International. “Childhood cancer has no borders. Why should childhood cancer treatments and cures? Even in the U.S. the majority of children with cancer continue to be treated with old drugs that were developed in the 1950’s, ‘60’s and 70’s. These drugs cost very little yet are too often unavailable to the majority of children with cancer in the world who happen to live in low to middle income countries. With increased access to essential childhood cancer medicines and radiation, children can be cured of their disease regardless of where they live in the world.” Ms. Hoffman will continue to represent the voice of the families of children with cancer as a member of the WHO Global Initiative for Childhood Cancer.

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  • Increase political commitment and capacity of countries to deliver best practices in childhood cancer diagnosis and treatment;
  • Support governments to develop high-quality cancer centers as well as develop standards and tools to guide the planning and implementation of interventions for early diagnosis, treatment and palliative and survivorship
    care inclusive of the needs of childhood cancers;
  • Improve access to affordable essential child cancer medicines and technologies;
  • Support governments to safeguard families of children with cancer from social isolation and financial ruin as a result of cancer care;
  • Prioritize cancer as a child health priority and increase available funding at the national and global levels.

This initiative is founded on the World Health Assembly’s resolution Cancer Prevention and Control through an Integrated Approach (WHA70.12), which urges governments and WHO to accelerate action to achieve the targets specified in the Global Action Plan and 2030 UN Agenda for Sustainable Development to reduce premature mortality from cancer.

Actions to increase childhood cancer survival today represent effective and tangible steps as part of the broader fight against non-communicable diseases – steps that will catalyze global efforts to transform childhood cancer outcomes worldwide and ultimately save many more lives of children, now and for years to come.

*Some Stakeholders include: The International Society of Pediatric Oncology (SIOP), Intenational society of pediatric oncologists, Union for International Cancer Control (UICC), International Atomic Energy Agency (IAEA), International Agency for Research on Cancer (IARC), Sick Kids Hospital of Toronto, Texas Children’s Hospital, World Bank, Pediatric Oncology Rally to Transform Access to Global Essentials (PORTAGE), Friends of Cancer Patients (FOCP), Chai Clinton Health Access Initiative (CCHAI), BIO Ventures for Global Health (BVGH), Pharmaceutical Industry, International Federation of Pharmaceutical Manufacturers & Associations (IFPMA)

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The American Childhood Cancer Organization was founded in Washington, D.C. in 1970 by parents of children and adolescents diagnosed with cancer to advocate for their needs and support research so every child survives and leads a long and healthy life. The U.S. largest grassroots organization at the forefront of the crucial battle against childhood cancer, the ACCO is dedicated to shaping policy, supporting research, raising awareness and providing educational resources and innovative programs to children with cancer, survivors and their families. Since its inception, the ACCO has helped support more than half a million families affected by childhood cancer. ACCO now has 35 local ACCO affiliates known as Founding Hope chapters throughout the United States. www.acco.org.

Childhood Cancer International (CCI) was founded in 1994 and is recognized as the largest patient support organization for childhood cancer in the world. Comprised of 188 member organizations in 98 countries, CCI represents the voice of children and adolescents with cancer, childhood cancer survivors and their families globally. Operating as a non-State Actor in official relations with the World Health Organization (WHO), CCI engages with the WHO as well as international develo
pment organizations, policy-makers, civil society organizations, research and medical professionals to advocate for the rights of children and adolescents with cancer and prioritize childhood cancer as an integral part of the local, national and global child health and development agenda. 
www.childhoodcancerinternational.org

FOR MORE INFORMATION OR TO SET UP AN INTERVIEW: Contact Ruth Hoffman, Chief Executive Officer, American Childhood Cancer Organization and President, Childhood Cancer International. rhoffman@acco.org; 202-262-9949.

The American Childhood Cancer Organization (ACCO) stands proudly at the forefront of the fight against childhood cancer, continuing our efforts to bring comfort and support to children with cancer and their families throughout their journey.
Our library of free learning resources is growing! Thanks to our donors, this past year, we delivered more than 45,000 individual items free of charge across the US! We are especially excited about the introduction of ACCO’s Medical Play Therapy Kit-a learning tool designed to familiarize children with the medical devices used during their cancer treatments. 

In the words of one parent, “My little Gabriel received his medical play kit yesterday! He loves it! What a brilliant idea to give our cancer kids back a sense of control, when there is so much they can’t control through treatment.” Another parent wrote to say, “For a patient like Liam, one of his biggest obstacles has always been overcoming the fear of his port being accessed. Thanks to your play kit Liam is finding fun and new ways of exploring the entire process of port activation. Thank you ACCO for our play kit.” We could ask for no better evidence of the importance of our organization than these powerful testimonials.

Awareness is building across the nation, and the world! The world sparkled with gold lights illuminating countless buildings during Childhood Cancer Awareness Month. Our 2015 Go Gold for Kids with Cancer® t-shirt campaigns raised more awareness than we could have ever imagined, with more than 12,012 shirts, honoring the names of 4,892 children who have suffered from childhood cancer, proudly bringing awareness of childhood cancer right into the heart of your local communities. Our new website gives families even easier access to our amazing wealth of learning resources, insightful blogs, and online support community, and through social media we connect more than 78,000 individual family members, survivors, and supporters with our ever-expanding ACCO family.

Our voice is spreading! In the US, ACCO participated in the writing of the Childhood Cancer STAR Act (Survivorship, Treatment Access & Research), which brings hope to tens of thousands of children on active treatment and to the hundreds of thousands of survivors through increased government appropriations. And our efforts do not end at our borders. Cancer remains the leading non-communicable disease-related cause of death of children in the world, primarily due to lack of access to quality healthcare and effective treatment options. I was proud to have served on the planning committee of the 68th World Health Assembly’s first side-event on childhood cancer, along with board member Dr. Greg Aune as invited speaker. ACCO will continue to represent the U.S. in global childhood cancer advocacy initiatives, including the WHO’s committee working towards a 2017 childhood cancer resolution. Our goal is to reduce global childhood cancer mortality 30% by 2030.
The ACCO is growing, thanks to you! To accommodate this growth, we will be looking for a larger space to allow us to more efficiently house and ship our resources across the country. Our mission won’t end until these learning resources and support are no longer needed. Only through the generosity of individuals like you, can we continue to impact the lives of cancer’s littlest patients. Thank you for your consideration to help raise awareness about childhood cancer and to help ACCO provide national and international advocacy, support, and essential learning resources to children and their families. 
 
Please consider a DONATION during this holiday season to further ACCO’s work towards reducing the burden of childhood cancer!
Because Kids Can’t Fight Cancer Alone®…our goal is to ensure that they don’t have to.
Ruth I Hoffman MPH, Executive Director
Click Here To Lean More about ACCO