States have a critical role to play in overcoming the national disparity between adult and childhood cancer research, treatment, and support. YOU can join the movement to make meaningful change by engaging policy makers at the local and state level. How? Below are the ways to become an advocate for kids with cancer.
If state funds have been allocated to adult cancer research, we must ask ourselves… what about kids?
The majority of cancer research at the national level is dedicated to adult cancers, not childhood cancers. ACCO was inspired by the success of Kentucky and their “Why Not Kids®” program: a state-level initiative to overcome this disparity. ACCO’s goal — and the goal of What About Kids? — is to spread this success across the country. Together, we can make childhood cancer a state health priority in funding and policies for kids fighting cancer and long-term childhood cancer survivors.
With the largest grassroots advocacy network in the country, we are here to support and provide data for your elected officials to understand how childhood cancer impacts families where you are. If you would like to receive a digital advocacy toolkit with a ten-step process for creating policy change in your state, get in touch with us:
The American Childhood Cancer Organization® (ACCO) and Momcology® are pleased to launch their joint Kids TOO initiative. For the past 50 years, advocacy has been at the heart of ACCO’s distinct mission. For nearly a decade, Momcology has been providing community-based support to childhood cancer families across the U.S. ACCO and Momcology are excited to be working in this joint effort.
The purpose of this collaboration is to train and empower parents so they can implement childhood cancer language in state cancer action plans, and advocate for the inclusion of pediatric cancer research in state cancer budgets. You can be a voice for change by joining the initiative!
Comprehensive Cancer Control (CCC) Plan
The National Comprehensive Cancer Control Program (NCCCP) mandates each state to publish a Comprehensive Cancer Control Plan, which identifies how each state addresses the burden of cancer in its geographic area. Unfortunately, there is no requirement for childhood cancer to be included, which often leads to it being overlooked. We believe each plan should have specific language regarding childhood cancer, research, treatment, psychosocial standards of care, and issues related to adult survivors of childhood cancer. See if your state is on the list.
Did you know the state budget process begins with the Governor? That’s why it’s extra important to engage state governors in September and ensure they understand the importance of raising awareness for childhood cancer. Join us to help proclaim September as Childhood Cancer Awareness Month in your state and jumpstart advocacy efforts by raising awareness. Click here to ask your Governor to sign the proclamation or copy and paste the proclamation language to include in an email request.
Contact Your Legislator
We’ve made it easy and quick for you to communicate with your legislators! Visit our Take Action center and send your senators, representatives or governor a message, asking them to support legislation that helps kids with cancer & childhood cancer funding. Templates and contact information is provided, so change is only a few clicks (and seconds) away!
Sign Up for Our Newsletter
Get monthly updates on childhood cancer advocacy, new ways to get involved and how our efforts are changing the lives of kids with cancer. Sign up to join our network today!
Follow & Share on Social Media
In our minds, advocacy is just a fancy word for storytelling to those who have the power to cast a vote. Only with raising awareness can we improve outcomes for kids with cancer. Social media plays a powerful role in sharing those stories. Follow ACCO on social media and share why you became an advocate!