What Is ICCD?
International Childhood Cancer Day (ICCD) is a global call to action in the fight against childhood cancer. Every day, more than 1,000 children are diagnosed with cancer somewhere in the world. Approximately 80% of the world’s children with cancer live in low-to-middle income countries where only 20% will survive. With survival rates greater than 80% in high-income countries, ACCO supports ICCD as we align with the World Health Organization’s Global Initiative for Childhood Cancer and the goal to cure 60% of the world’s children with cancer by 2030.
ICCD 2021 reminds us that every child leaves a mark, both in our hearts and in the world. We are forever impacted by the lives of those children who are battling cancer, those who have battled it in the past, and those who are gone too soon. The data gathered from their diagnosis, treatment, and long term survivorship leaves its mark, as we advocate together for equitable access to quality care for all children with cancer, regardless of where they live in the world.
Why Data Matters
A cancer patient’s data can directly impact research and save lives. By sharing data, every child becomes a critical piece of the research on childhood cancer.
What Is CCDI?
The Childhood Cancer Data Initiative was developed by the National Cancer Institute (NCI) to help address the critical need for more extensive data for childhood cancer. Childhood cancer data is often stored at the hospital or institution where a child is treated. No single institution treats enough children to move research forward. Learn more by clicking this link to help improve the future for children, adolescents and young adults with cancer by connecting this data and sharing it with the entire cancer research community.
World Health Organization’s Global Initiative for Childhood Cancer
The World Health Organization (WHO) Global Initiative for Childhood Cancer aims to improve outcomes for children with cancer around the world.
World Health Organization (WHO) held a webinar explaining the GICC (Global Initiative for Childhood Cancer) and urged the world to take action and launch the CureAll campaign for childhood cancer. Click below to read the official brochures!
WHO Initiative for Childhood Cancer: An Overview
Click here to view and download.
WHO Initiative for Childhood Cancer: The Framework
Click here to view and download.
The Kids Behind the Data
In the world of childhood cancer research, every data point is a child. Click the portraits below to hear some of their incredible stories.
Leave a Mark on the Mural
For ICCD this year, ACCO has produced a digital mural representing U.S. survival statistics. Every data point is a child, and you can add your child’s name to the graph. Click the image or the link below to add a name to the mural.
Click here: https://visufund.com/iccd2021
You can join the fight today. Click on the buttons below to learn more about ACCO’s engagement on the state, national, and international levels.
Support the Gabriella Miller Kids First Research Act 2.0
ACCO is honored to join together with the childhood cancer community in support of H.R. 623, the Gabriella Miller Kids First Research Act 2.0. Congresswoman Jennifer Wexton (D-VA-10) as original sponsor, introduced the Bill to the 117th Congress on January 28th, 2021. The bill would redirect penalties collected from pharmaceutical company penalties to rare pediatric disease research, including childhood cancer research at the National Institutes of Health. (source)
H.R. 623 was named after Gabriella Miller, the ten-year old daughter of Ellyn and Mark Miller. Gabriella was diagnosed with Diffuse Pontine Glioma (DIPG) at age 9, and bravely challenged elected officials to “stop talking and start doing,” two weeks before she died of brain cancer at the age of 10.” The legislation builds off the great success of the first ‘Gabriella Miller Kids First Research Act,’ passed in 2014, which authorized $12.5 million annually for ten years to NIH directed pediatric rare disease research.
Show Your Support for This Legislation. Please join us by sharing your child’s journey in writing a letter of support. Click here to view and join our voter voice campaign. Click here to view NIH Funded Research.