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Share Your Story With the World About How Childhood Cancer Changed Your Life!

Tag Archives: childhood cancer

SHARE YOUR STORY WITH THE WORLD 
HOW DID CHILDHOOD CANCER CHANGE YOUR LIFE?

For those of us who have heard the words “your child or teen has cancer,” we know this is not just something that happens in the United States. It happens to families across the globe, everyday! In fact, there are more than 300,000 children under the age of 19 diagnosed around the world each year. 80% of these children are from low-middle income countries where access to treatment and cure are too often beyond reach. 
We also know that as a united front, from every country together, we have the opportunity to change the impact of this devastating diagnosis. The World Health Organization (WHO) is inviting families to share our stories to raise awareness of childhood cancer as a unique and significant type of Noncommunicable Disease (NCD). We ask you to share your story and be a voice for those who have none! 
To Share Your Story Click Here or the Button Below:
This is an opportunity to share YOUR personal story of approximately 400 words about how childhood cancer impacted your life; the measures taken to treat the child in your country; the actions of stakeholders that were helpful; as well as your perspective on how government can enable support to improve childhood cancer outcomes. Short stories can be written from the perspective of the patient, survivor, parent or healthcare worker. We are looking to highlight the childhood cancer challenges that exist and the great potential to overcome them.

*Note: We would like to include high quality photos to show the child or teen who is featured in the story, as well as tell the story through the image. We ask that your NCD story and photo please be emailed to:

ncds-and-me@who.int and to us here at ACCO (copy and paste email) at: rhoffman@acco.org.

 

Thanks in advance for your timely response to this enormous opportunity.
Please feel free to contact me if you have any questions at: rhoffman@acco.org
Thank You,
Ruth I Hoffman, MPH, Executive Director of ACCO and
Vice Chair of Childhood Cancer International

An Introduction to Childhood Cancer

IMG_2109Cancer is a general term given to diseases caused by the uncontrolled growth of abnormal cells.  Awareness of and attention to adult cancers has grown exponentially over the past decades, but unfortunately, there is much less awareness of and knowledge about childhood cancer.  Did you know that 1 out of every 285 children will be diagnosed with childhood cancer this year alone?  Or that more than 1,200 children die from childhood cancer ever year?  At the American Childhood Cancer Organization (ACCO), our mission is to educate and build awareness about this devastating disease and the terrible toll it takes on children and their families.  So perhaps the best place to start is with a few simple facts about childhood cancer

The Most Common Types of Childhood Cancer

Unlike adult cancers, childhood cancers are not closely linked to lifestyle choices or environmental exposure, nor are there screening mechanisms to enable early detection.  Often, childhood cancer is not detected or diagnosed until it begins causing noticeable symptoms.  The most common types of childhood cancer are:

  • Leukemia: Leukemias involve cancers of the bone marrow and blood, and constitute about 30% of all childhood cancers. The two types we hear about most are acute lymphocytic leukemia (ALL) and acute myelogenous leukemia (AML), both of which can grow quickly and require immediate treatment.
  • Brain and central nervous system tumors: Brain tumors (and less commonly spinal cord tumors) make up about a quarter (26%) of all childhood cancers. There are a variety of different types of brain tumors, classified by where the tumor started, such as gliomas, astrocytomas, and primitive neuroectodermal tumors.  Treatment and prognosis depends heavily on the exact type and location of the tumor.
  • Lymphoma: Lymphoma begins in the immune system, and is likely to be found the lymph nodes, tonsils, thymus, or spleen. Hodgkin lymphoma accounts for around 3% of childhood cancer and is most common in young adults; non-Hodgkin lymphoma accounts for around 5% of childhood cancers and occurs in younger children (but is rare in children under 3).  Lymphoma is generally a rapidly-growing form of cancer and requires immediate treatment.
  • Neuroblastoma: Found primarily in infants and very young children, neuroblastomas constitute about 6% of childhood cancers. Although neuroblastoma can start anywhere, it is most commonly found in the abdomen.
  • Wilms tumor: About 5% of childhood cancers, Wilms tumor starts in one kidney (it can occur in both kidneys, but this is rare). It is most common in children between the ages of 3-4, and uncommon in children older than 6.
  • Rhabdomyosarcoma: The most commonly occurring soft tissue sarcoma in children, this cancer grows in cells that develop into skeletal muscles and can be found anywhere in the body. It accounts for approximately 3% of childhood cancers.
  • Bone cancers: Primary bone cancers start in the bones, and are distinguished from metastatic bone cancer, which is a cancer that has started elsewhere but spread into the bone. Primary bone cancers make up about 3% of childhood cancer; the most common types of bone cancer in children are osteosarcoma and Ewing sarcoma.
  • Retinoblastoma: This cancer starts in the eye and is most common in children under the age of two (it is rarely found in children older than 6). It constitutes about 2% of childhood cancers.

Why Is Raising Awareness About Childhood Cancer Important?

Although still considered to be “rare” by some, the fact is that childhood cancer is the second leading cause of death of children under the age of 15 after accidental deaths, and it seems like most people know at least someone in their school or their town who has been personally affected by childhood cancer.  And while rates of childhood cancer are increasing, research into the development of new, less toxic treatment options for childhood cancer is not keeping pace; of the more than 100 new cancer drugs approved by the FDA since 1990, only two were developed specifically to treat childhood cancer.  Many forms of childhood cancer are now considered “treatable”, with long-term survivor rates above 80 or even 90%, some forms of childhood cancer still have extremely high mortality rates and most survivors are left with long-term health problems as a result of their cancer treatment.

About the American Childhood Cancer Organization

The American Childhood Cancer Organization (ACCO) is a non-profit charity dedicated to helping kids with cancer and their families navigate the difficult journey from cancer diagnosis through survivorship.  Internationally, the ACCO is the sole US member of Childhood Cancer International (CCI), the largest patient-support organization for childhood cancer in the world.  At the national level, the ACCO promotes the critical importance of ensuring continued funding into new and better treatment protocols for childhood cancer.  At the grassroots level, the ACCO is focused on the children: developing and providing educational tools for families and learning resources for children in order to make the lives of children and their families easier and brighter during this difficult time.  Many of our resources are available free of charge for families coping with childhood cancer.

For additional information about childhood cancer, on the ACCO in general, or to order resources for you or your child, please visit our website at www.acco.org.

For additional information on our resources or information on how to obtain our resources free of charge, please visit our website at www.acco.org.

For more information about the American Childhood Cancer Organization and how we can help, call 855.858.2226 or visit:

Want To Read American Childhood Cancer Organization On Your Phone? Click the NoteStream logo: NoteStream

Christopher Gitter Winter 2015 John Foy & Associates Leukemia Scholarship Recipient

Christopher Gitter

Atlanta law firm, John Foy & Associates, announced their first winner of a bi-annual “Strong Arm” Leukemia Scholarship. Christopher Gitter, 18, a Mendota Heights, MN, resident was awarded the first “Strong Arm” Leukemia Scholarship. Chris will use the $1,000 as an incoming college freshman in Fall 2016. He has already been accepted into the College of Agricultural & Life Sciences at University of Wisconsin, Madison. Christopher is waiting to hear from a few more schools, but if he decides to attend Wisconsin, he will be a fifth-generation Badger. Read more and watch the interview with Chris here.

Read Chris’s Winning Essay Here.

You too can join the chorus in a brand new song that will be released globally on International Childhood Cancer Day, February 15, 2016. The song “We Are One” is written by Christophe Beck who composed the film music for Disney’s Frozen.

Visit child4child.com and record your voice now. All you need is your webcam. Let’s make a change.

Join Cameron Dallas, 2014 Teen Choice Awards winner, in raising your voice against childhood cancer:

We need your help to make this happen!

If you are interested in adding your child’s voice to this amazing chorus, here’s what to do:

  • Go to child4child.com
  • Learn the very simple, moving chorus by listening to the samples recorded by some incredible child singers
  • When your child is ready, click the yellow “Record the Chorus” button on child4child.com to record your child’s version of the chorus

record the chorus button

  • Pass the word along and help make this hit go viral!
  • Record your child singing along with BFFs!
  • Ask your child’s teacher to have the entire class record their voices!
  • Get your church choir to raise their voices together on the chorus!
  • Organize a team building event for your child’s sports team and record them all singing together! The possibilities are truly endless!

More about Cameron Dallas

California native Cameron Dallas has gained over 15 million combined followers on social media in less than a year. Cameron most recently won Teen’s Choice Favorite Viner at the 2014 Teen Choice Awards.  He is also the lead role in a 2014 feature length film, “Expelled” which debuted at the top of the iTunes movie download chart.

You too can join the chorus in a brand new song that will be released globally on International Childhood Cancer Day, February 15, 2016. The song “We Are One” is written by Christophe Beck who composed the film music for Disney’s Frozen.

Visit child4child.com and record your voice now. All you need is your webcam. Let’s make a change.

Join Reuben de Maid, rising UK child star, in raising your voice against childhood cancer:

We need your help to make this happen!

If you are interested in adding your child’s voice to this amazing chorus, here’s what to do:

  • Go to child4child.com
  • Learn the very simple, moving chorus by listening to the samples recorded by some incredible child singers
  • When your child is ready, click the yellow “Record the Chorus” button on child4child.com to record your child’s version of the chorus

record the chorus button

  • Pass the word along and help make this hit go viral!
  • Record your child singing along with BFFs!
  • Ask your child’s teacher to have the entire class record their voices!
  • Get your church choir to raise their voices together on the chorus!
  • Organize a team building event for your child’s sports team and record them all singing together! The possibilities are truly endless!

More about Reuben de Maid

Emeli Sande performed by Reuben de Maid at Open Mic UK singing contest:

You too can join the chorus in a brand new song that will be released globally on International Childhood Cancer Day, February 15, 2016. The song “We Are One” is written by Christophe Beck who composed the film music for Disney’s Frozen.

Visit child4child.com and record your voice now. All you need is your webcam. Let’s make a change.

Join Laura Kamhuber, from the TV show The Voice Kids Germany, in raising your voice against childhood cancer:

We need your help to make this happen!

If you are interested in adding your child’s voice to this amazing chorus, here’s what to do:

  • Go to child4child.com
  • Learn the very simple, moving chorus by listening to the samples recorded by some incredible child singers
  • When your child is ready, click the yellow “Record the Chorus” button on child4child.com to record your child’s version of the chorus

record the chorus button

  • Pass the word along and help make this hit go viral!
  • Record your child singing along with BFFs!
  • Ask your child’s teacher to have the entire class record their voices!
  • Get your church choir to raise their voices together on the chorus!
  • Organize a team building event for your child’s sports team and record them all singing together! The possibilities are truly endless!

More about Laura Kamhuber

Laura sings Hurt by Christina Aguilera on The Voice Kids: Finale

You too can join the chorus in a brand new song that will be released globally on International Childhood Cancer Day, February 15, 2016. The song “We Are One” is written by Christophe Beck who composed the film music for Disney’s Frozen.

Visit child4child.com and record your voice now. All you need is your webcam. Let’s make a change.

Join Jahna Lucero, Grand Finalist Teen Star UK, in raising your voice against childhood cancer:

We need your help to make this happen!

If you are interested in adding your child’s voice to this amazing chorus, here’s what to do:

  • Go to child4child.com
  • Learn the very simple, moving chorus by listening to the samples recorded by some incredible child singers
  • When your child is ready, click the yellow “Record the Chorus” button on child4child.com to record your child’s version of the chorus

record the chorus button

  • Pass the word along and help make this hit go viral!
  • Record your child singing along with BFFs!
  • Ask your child’s teacher to have the entire class record their voices!
  • Get your church choir to raise their voices together on the chorus!
  • Organize a team building event for your child’s sports team and record them all singing together! The possibilities are truly endless!

More about Jahna Lucero

Hello – Adele (Performed By Jahna Lucero) at Mr & Miss Teen Global 2015:

You too can join the chorus in a brand new song that will be released globally on International Childhood Cancer Day, February 15, 2016. The song “We Are One” is written by Christophe Beck who composed the film music for Disney’s Frozen.

Visit child4child.com and record your voice now. All you need is your webcam. Let’s make a change.

Join Charley Lauren,  TeenStar UK Singing Contestant, in raising your voice against childhood cancer:

We need your help to make this happen!

If you are interested in adding your child’s voice to this amazing chorus, here’s what to do:

  • Go to child4child.com
  • Learn the very simple, moving chorus by listening to the samples recorded by some incredible child singers
  • When your child is ready, click the yellow “Record the Chorus” button on child4child.com to record your child’s version of the chorus

record the chorus button

  • Pass the word along and help make this hit go viral!
  • Record your child singing along with BFFs!
  • Ask your child’s teacher to have the entire class record their voices!
  • Get your church choir to raise their voices together on the chorus!
  • Organize a team building event for your child’s sports team and record them all singing together! The possibilities are truly endless!

More by Charley Lauren

You too can join the chorus in a brand new song that will be released globally on International Childhood Cancer Day, February 15, 2016. The song “We Are One” is written by Christophe Beck who composed the film music for Disney’s Frozen.

Visit child4child.com and record your voice now. All you need is your webcam. Let’s make a change.

Join Robbie Firmin, from the show Britain’s Got Talent, in raising your voice against childhood cancer:

We need your help to make this happen!

If you are interested in adding your child’s voice to this amazing chorus, here’s what to do:

  • Go to child4child.com
  • Learn the very simple, moving chorus by listening to the samples recorded by some incredible child singers
  • When your child is ready, click the yellow “Record the Chorus” button on child4child.com to record your child’s version of the chorus

record the chorus button

  • Pass the word along and help make this hit go viral!
  • Record your child singing along with BFFs!
  • Ask your child’s teacher to have the entire class record their voices!
  • Get your church choir to raise their voices together on the chorus!
  • Organize a team building event for your child’s sports team and record them all singing together! The possibilities are truly endless!

More about Robbie Firmin

Robbie Firmin – Britain’s Got Talent 2011 audition:

You too can join the chorus in a brand new song that will be released globally on International Childhood Cancer Day, February 15, 2016. The song “We Are One” is written by Christophe Beck who composed the film music for Disney’s Frozen.

Visit child4child.com and record your voice now. All you need is your webcam. Let’s make a change.

Join Nathan Bautista, from the show The Voice Kids Philippines, in raising your voice against childhood cancer:

We need your help to make this happen!

If you are interested in adding your child’s voice to this amazing chorus, here’s what to do:

  • Go to child4child.com
  • Learn the very simple, moving chorus by listening to the samples recorded by some incredible child singers
  • When your child is ready, click the yellow “Record the Chorus” button on child4child.com to record your child’s version of the chorus

record the chorus button

  • Pass the word along and help make this hit go viral!
  • Record your child singing along with BFFs!
  • Ask your child’s teacher to have the entire class record their voices!
  • Get your church choir to raise their voices together on the chorus!
  • Organize a team building event for your child’s sports team and record them all singing together! The possibilities are truly endless!

More about Nathan Bautista

The Voice Kids Philippines Blind Audition “Don’t Stop Believing” by Nathan Bautista: