Meet Blake, a resilient ependymoma warrior.
At just 16 months old, Blake began showing signs of extreme fatigue, moodiness, and early morning cries of pain—symptoms that were out of character. He also lost some of his ability to move around, which deeply concerned his parents. Initially, his pediatrician dismissed these symptoms, but trusting their instincts, his parents took him to the emergency room for further evaluation.
A CT scan revealed a large tumor in Blake’s brain causing hydrocephalus, a condition where fluid builds up in the brain. He was immediately taken into emergency surgery to place an external ventricular drain (EVD) to relieve the pressure. Doctors performed another surgery to remove as much of the tumor as possible. When Blake woke up, he had lost function on his left side.
Over the following years, Blake underwent multiple surgeries, including two craniotomies, chest port placement, and an Ommaya surgery. His treatment plan included several rounds of chemotherapy, 32 rounds of proton therapy, and photon radiation. Despite these intensive treatments, Blake experienced two relapses. As a result, he continues to face challenges with mobility, speech, and limited use of his left arm and hand.
Blake’s spirit remains unshaken. He loves watching Bluey, playing soccer, and spending time outdoors. Currently in post-treatment observation, Blake completed his last treatment in November 2024 and is awaiting his next scan in May. His courage and positivity make him a true Gold Ribbon Hero.
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