Meet Neev, a DIPG hero.
When Neev had redness in his eyes and became wobbly, his parents took notice. “We had to take him to urgent care for a viral eye infection. The doctor rushed us to the emergency room and upon arrival, they took us in for a CT scan and confirmed a mass on his brain stem” remembers his mother, Misha. In August of 2020, Neev was diagnosed with Diffuse Intrinsic Pontine Glioma.
Neev underwent two rounds of radiation, three chemotherapy agents and a brain biopsy. He endured abdominal surgery to place and remove a pump. After losing all bodily functions, he started intense rehabilitation and regained a few functions back. At that point, he went through experimental chemotherapy and lost all functions he had regained. Through it all, Neev and his family remained optimistic and determined.
On November 30, 2021, Neev passed away surrounded by family. His family started a Go Fund Me page shortly after he was diagnosed to help with the medical expenses and with the money that wasn’t used, the family donated it to fund DIPG research.
In December 2022, Neev’s brother, Rayann held a toy drive and donated the toys to kids undergoing treatment at UCSF Benihoff Children’s Hospital.
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Learn more about DIPG here.