Knox was diagnosed with alveolar rhabdomyosarcoma at 7 months old. He has passed away.

What’s one thing you wish you had known in those first 48 hours?

“It will be necessary to ask for and accept help from your family, friends, and community. You are not on this journey alone.”

What helped you the most in those first 48 hours?

“Being surrounded by family as we moved through all of the uncertainty of final diagnosis, staging and starting on the decide treatment plan.”

What’s is one moment in those first 48 hours that you’ll never forget?

“Being absolutely terrified to tell our older children that their brother had cancer.”

If you could go back, what’s one thing you’d tell yourself?

“Give yourself permission to feel, to embrace your limitations and let the little things in life go. The laundry will always be there. The toys can be cleaned up later. Your child may not always be there.”

---

This First 48 story was submitted by Alexa.