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2020 DIPG Awareness Day

Diffuse Intrinsic Pontine Glioma (DIPG) remains one of the deadliest forms of childhood cancer, with a long-term survival rate of less than 1%. An especially aggressive type of cancerous tumor, DIPG grows in an area of the brain stem known as the pons, which is responsible for many critical bodily functions like heartbeat, breathing, swallowing, eyesight, and balance. As it grows, it puts increasing pressure on the nerves controlling the pons and the essential functions it regulates, quickly interfering with almost all normal functions of the body. Symptoms of DIPG include double vision, reduced eye movement, facial weakness, and problems walking, speaking, chewing, and swallowing. Eventually, the tumor will begin to compromise the body’s ability to breathe and regulate heartbeat. Unfortunately, the average lifespan after diagnosis with DIPG is only nine short months.

Meet a few DIPG Warriors

Last year, Kentucky Governor, Andy Beshear proclaimed that May 17, 2020 is Diffuse Intrinsic Pontine Glioma Awareness Day. Pictured here is the official proclamation. Gold Ribbon Hero, David Jr. was at the proclamation signing!

Read more about DIPG

ACCO offers the only book in the world that is devoted to DIPG as one of our free educational resources that we provide to families currently in treatment. It is now online for you to read!

Understanding the Journey

Understanding the Journey: A Parent’s Guide to DIPG

edited by Ruth I Hoffman, MPH
A 368-page comprehensive resource that guides the family whose child has been diagnosed with a diffuse intrinsic pontine glioma through this difficult diagnosis. Written by pediatric neuro-oncology experts and by parents of children with DIPG, this resource offers in-depth medical information as well as emotional understanding and guidance.

This book and many others are available to read online in our Digital Library.

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