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"The Grassroots" e-Bulletin

ACCO E-BULLETIN:

STRENGTHENING THE VOICE OF THE GRASSROOTS CHILDHOOD CANCER COMMUNITY

Welcome to ACCO’s e-Bulletin-“The Grassroots.” The term “grassroots” refers to a group of people who have been impacted by a cause and who stand united behind a movement to make a difference in that cause. As families of children with cancer we are the grassroots voice of our nations’ children with cancer. In order to strengthen our grassroots community we need to be informed about policies, legislation, decisions, and opportunities that impact our children’s treatment and quality of life, and advocate for better treatments for those children who have yet to be diagnosed.This e-Bulletin is an email newsletter filled with useful information on a wide variety of topics, from treatment and survivorship to advocacy and cancer-related legislation. Below, you will find links to featured articles in the E-Bulletin. To receive “The Grassroots” e-Bulletin, please join our email list.

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PAST EDITIONS AND ARTICLES

QUICK BULLETINS

Take Action to Strengthen Law for Pediatric Cancer Patients (4/16/12)

Action Alert- Senate NIH Amendment (3/22/13)


February 2013

Briefer of NIH funding as of 12/13


May 2012

Important Legislation Passed (5/24/12)


February 2012

ASCO, COG, ASPHO Drug Manufacturer Letters

U.S. Companies Producing Preservative-Free Methotrexate

Children’s Oncology Group Update on the Methotrexate Shortage*


October 2011

Executive Order- Drug Shortages (10/31/2011)

Survey: Childhood Cancer Impact on Families (10/11)


September 2011

Pediatric Cancer Caucus (9/11)

America’s Drug Shortage and What YOU Can Do to Have Your Voice Heard (9/11)

Supplemental Slideshow: Dr. Link Congressional Presentation on Oncology Drug Shortage

Myeloid Leukemias- Current and Future Approaches to Targeted and Individualized Therapies (9/11)

Operation Creating Hope (9/11)

ACCO and Childhood Cancer as a Non-Communicable Disease (9/11)


May 2011

FY ’12 Conquer Childhood Cancer DCL and Appropriations Letter (5/11)


March 2011

Targeted Treatments for ALL (3/11)

Is Childhood Cancer Included in YOUR STATE’S Cancer Plan? (3/11)

The Creating Hope Act (3/11)

ACCO