Websites Links

ACCO can help you connect with other organizations and foundations that provide special services for children with cancer and their families.

Note: If you represent an organization that would like to be listed on this web page, please contact the ACCO webmaster at linkrequest@acco.org.

Resources for Parents of Children with Cancer

Cancer kid camps, hats and wigs, non-ACCO childhood cancer books, airline flights, and more

Resources for parents of childhood cancer include books, cancer kid camps, hats and wigs, free airline flights and lodging, support organizations, and more as listed below. Rather than keep two versions of these lists, in 2008 Candlelighters and the Ped-Onc Resource Center joined their lists into one. These reside on the Ped-Onc site for the time being.

General Childhood Cancer Web Sites

Pediatric Oncology Resource Center

This is the place for parents, friends, and families of children who have or had childhood cancer. This site was created by and for people who know young people who are recovering from cancer. Resources, Web links, and original content.

Patient-Centered Guides

Patient-Centered Guides are a mix of medical, practical and emotional information, grounded in Western medicine, told by people who have been there.

The Never-Ending Squirrel Tale

Practical tips and encouragement for the parents of children with cancer. Parents can both read and contribute stories and helpful hints. Squirrel Tales has been online since about 1997. It is the home of "You know you're the parent of a child with cancer when . . . ".
Review 7/07

CureSearch National Childhood Cancer Foundation

Supports a network of childhood cancer programs at institutions throughout North America, and in Australia and Europe , which conduct ground-breaking laboratory research and give state-of-the-art care to infants, children, teens, and young adults.

National Children's Cancer Society

The National Children’s Cancer Society was established in 1987 to improve the quality of life for children with cancer through financial and in-kind assistance, advocacy, support services, and educational resources. Since its inception, the N.C.C.S. has provided more than $38.2 million in direct financial assistance to more than 19,000 children with cancer in the United States , and has distributed more than $185 million in donated pharmaceuticals and medical supplies to 65,000 children treated at 54 facilities in 35 countries.
Review 8/07

Ronald McDonald House Charities

Ronald McDonald Houses provide a "home-away-from-home" for the families of seriously ill children receiving treatment at nearby hospitals.

Hope Street Kids

The mission of Hope Street Kids is to eliminate childhood cancer through advocacy, education and cutting-edge research, and to help sustain and support children with cancer and their families during and after treatment.

STARBRIGHT Foundation

The Starbright Foundation is dedicated to the development of projects that empower seriously ill children to combat the medical and emotional challenges they face on a daily basis. Starbright projects do more than educate or entertain: they address the core issues that accompany illness - the pain, fear, loneliness, and depression that can be as damaging as the sickness itself.

The International Confederation of Childhood Cancer Parent Organizations (ICCCPO)

This web site is intended to be a major resource for parent organizations, and individual parents, throughout the world. It brings together information about parent organizations around the world, and provides links to sites which contain information of value for parents and their families.

Child Cancer Foundation in Hungary

The Child Cancer Foundation is the biggest in Hungary , supporting over 600 children. The foundation also helps hospitals and medical centers by buying the latest equipments in medical technology. "We are working very hard to rise the chances of these little children for a better and healthy life."

I Care I Cure Foundation

The purpose of the foundation is development of, and raises public awareness about, cutting-edge, targeted therapies for childhood cancer, so that the treatment of childhood cancer will be gentler and more tolerable. While this foundation does not provide direct services for children with cancer, it is seeking funds to research less-toxic treatments.
Review 11/08

General Cancer Web Sites/Foundations (not pediatric-specific)

National Cancer Institute (cancer.gov)

The National Cancer Institute (NCI) is a component of the National Institutes of Health (NIH), one of eight agencies that compose the Public Health Service (PHS) in the Department of Health and Human Services (DHHS). The NCI, established under the National Cancer Act of 1937, is the Federal Government's principal agency for cancer research and training. The National Cancer Act of 1971 broadened the scope and responsibilities of the NCI and created the National Cancer Program. Over the years, legislative amendments have maintained the NCI authorities and responsibilities and added new information dissemination mandates as well as a requirement to assess the incorporation of state-of-the-art cancer treatments into clinical practice.

OncoLink - University of Pennsylvania Cancer Center

OncoLink was founded in 1994 by Penn cancer specialists with a mission to help cancer patients, families, health care professionals and the general public get accurate cancer-related information at no charge.

Steve Dunn's CancerGuide

CancerGuide is dedicated to helping you find the answers to your questions about cancer, and especially to helping you find the questions you need to ask.

Lance Armstrong Foundation

The mission of the Lance Armstrong Foundation is to enhance the quality of survival of those diagnosed with cancer. The LAF seeks to promote the optimal physical, psychological, and social recovery and care of cancer survivors and their loved ones.

MacMillan Cancer Support

MacMillan Cancer Support aims to help people live with cancer by providing information and emotional support for patients, their families and health professionals. They provide medical and financial support for those in the United Kingdom. Even if you are not in the UK, their childhood cancer section is worth checking out.

CancerConnect.com

Cancer Connect provides current, comprehensive, authoritative information on the prevention, diagnosis, and management of cancer and a community where patients can exchange information and get support and inspiration..

Vital Options International

A not-for-profit organization using communications technology to reach every person touched by cancer. Vital Options mission is to faciliate a global cancer dialogue. Vital Options and The Group Room radio program dissolve the barriers of time and distance. "We allow people from all walks of life, all neighborhoods, and in any physical condition to meet, talk, take care of one another, exchange information, and speak in a unified voice about the cancer experience. We strive to maintain a helpful, informative, easy-to-use website." Strong support sections for young adults.

Information on Cancer

CURE: Cancer Updates, Research & Education

CURE is a magazine for individuals coping with cancer and blood disorders. It is available with free access online; it is also available as a print version. CURE provides scientific information in an easy-to-understand format. It is published by physicians committed to providing quality care to their patients. It is not childhood cancer specific, but a search function allows one to find pertinent articles in back issues.
Review 7/07.

Exploring Our Molecular Selves

Parents are often told information about the molecular cytogenetics of their child's cancer. To help understand this sometimes bewildering amount of information, they can turn to the Human Genome Project (HGP). HGP created a free, online multimedia kit to serve as an educational tool for high school students and the general public.


Online Interactive Games

The Adventures of Captain Chemo

Captain Chemo is a free, interactive online game. A comic strip superhero - devised by a teenage cancer patient and brought to life in a computer game and website by The Royal Marsden Hospital - is about to star in a brand new adventure to help other young sufferers fight the disease.
Review 8/07.

Support Organizations

American Psychosocial Oncology Society

The mission of American Psychosocial Oncology Society is to advance the science and practice of psychosocial care for people with cancer. The web site is not childhood cancer specific, but it offers some good information for this subset of cancer survivors. The online education section offers slide show presentations by specialists in the field of psychosocial aspects of cancer survivorship.
Review 8/07

SuperSibs!

SuperSibs! is a national organization with the goal is to reach out to brothers and sisters of over 10,000 children who are diagnosed with cancer each year. They work to make these siblings feel valued, validated, heard, supported and delighted as recipients of SuperSibs! services and as participants in SuperSibs! activities.
Review 8/07
 

Children's Oncology Camping Association International

Children's Oncology Camping Association is an international organization with a mission to strengthen the community of camps for children with cancer and their families through networking, advocacy, education and other resources. A list of more than 65 accredited pediatric oncology camps can be found on this site.

 

Believe in Tomorrow Children's Foundation

Believe in Tomorrow Children's Foundation offers respite housing and hospital housing free of charge for critically ill children and their families
Review 3/2012

 

Cancer Warriors, Inc.

Cancer Warriors offers encouragement and support for children, siblings and caregivers during treatment for childhood cancer. They raise funds for childhood cancer research and help raise awareness and educate the public about the devastating diagnosis of childhood cancer. Cancer Warriors provide emotional and financial support through programs and services that allow these families to be sponsored by caring individuals, schools, churches, businesses, etc.
Review 8/07

CancerCare

CancerCare is a national non-profit organization whose mission is to provide free professional help to people with all cancers through counseling, education, information and referral and direct financial assistance.

Personal Web Sites

Chemochick

"My name is Deiah Haddock and I am a 16 year old female cancer survivor! This is just a place for me to post my writings, pictures and to keep everyone updated on my ever changing life!" Last updated 2003.
Review 7/07

Legal Support

American Society of Law, Medicine & Ethics

The mission of the American Society of Law, Medicine & Ethics is to provide high-quality scholarship, debate, and critical thought to the community of professionals at the nexus of law, health care, and ethics.

Miscellaneous

Hugs and Hope Club

The Hugs and Hope Club organizes the sending of cheery cards and gifts to children who are sick. You can help out, or you can sign up your child.
Review 7/07.
[more of this type of web site on the ped-onc resource center]

Songs of Love Foundation

Songs of Love Foundation is a nonprofit organization that creates and delivers fully produced personalized songs, free of charge, to children and teens who are battling serious illnesses. Each child receives a CD or cassette of their very own "Song of Love" containing their names and all the special things and people they love. For more information visit songsoflove.org or call 1-800-960-SONG.

Make A Child Smile

Make A Child Smile (MACS) is a non-profit organization that provides emotional and financial support to critically ill children and their families. Visitors to the site can participate by sending the featured children and their siblings’ cards, letters, and small gifts through postal mail.

Angels for Hope

Angels for Hope are available free of charge to those who are severely injured and/or chronically ill, as well as their caregivers, or just someone that needs hope - as a tangible reminder that you are not alone, that others care, and that we remember you in our thoughts and prayers. All angels are sent with a small note to the receiver carrying a special verse and, if you want them to know, who it was requested by.

The Ride of Love

The Ride of Love (ROL) is a fundraiser for the children of Camp Smile-A-Mile. Camp Smile-A-Mile is an organization that gives kids with cancer a place to go for camp. A place for them to forget about cancer and just have fun and be a kid. A place where they can be themselves? Get treatment, go without prosthetic limbs and hair, and be around others who are just like them.

Patient Activists featured on Patient-Centered Guides

Each month, Onconurse.com will add a new profile of someone who is actively supporting patient efforts to heal, cope, or improve healthcare.