ACCO Director with President George H.W. Bush
National Cancer Committees
ACCO currently represents families of children with cancer and survivors on the Washington DC-based national cancer committees listed below. As an active member of each committee, Executive Director of American Childhood Cancer Organization, Ruth Hoffman, advocates for the needs of our families.
ACCO is a member of the following:
- The National Coalition for Cancer Research
- The FDA Council
- The International Confederation of Childhood Cancer Parent Organizations (ICCCPO)
ACCO helps parents dissatisfied with their child's treatment plan find second opinions.
ACCO collaborates with the following organizations:
Ongoing Advocacy Projects
How to Connect with Government
How to write to your congressional representatives.
Links to advocacy agencies
Childhood Cancer Ombudsman Program
This is a service of the Childhood Brain Tumor foundation that provides information regarding education, rehabilitation, and employment discrimination of childhood cancer survivors.
Special Needs Advocate for Parents
An organization to help with education, legal and insurance problems - good newsletter articles.
Patient Advocate Foundation
A non-profit organization designed as a liaison between patients and their insurers to resolve issues.
A Lion in the House
A Lion in the House (by Steven Bognar and Julia Reichart) is a documentary that follows several childhood cancer patients through phases of treatment. In association with this project, 'My Lion' provides information kits and training for youth groups that want to do community service around childhood cancer.
Advocating for Your Child
This is a 7-page article to help begin the process of advocating for your child's special needs as related to education. Principles can be applied to other situations.